Consent and Inclusion, Diversity, Equity and Accessibility

Organization

Canadian National Institute for the Blind (CNIB)

Published

2023

Project Leader(s)

Mahadeo Sukhai

Summary

To consent or not consent is a question that has perplexed individuals with disabilities for some time. There is much information about privacy and data protection in the media. The purpose of the project is to explore the experiences of individuals with disabilities relating to consent and privacy. The goal of the project is to draft a list of best practices and recommendations to improve privacy protection and the garnering of consent for individuals with disabilities whether it be at the grocery store or in a bank. An environmental scan of the literature in the area was completed. Co-design sessions and interviews using the Delphi method were undertaken and recommendations developed to help privacy professionals shape their approach to ensure privacy protection for people with disabilities is front of mind in strategic planning and policy development. Using qualitative research methods, themes of safety, authentication and verification, accessibility, plain language and self-determination were highlighted. These themes provided the impetus to craft the recommendations contained within the report. It is hoped that the recommendations will lead to systematic change in the way privacy is considered and protected for individuals who experience sight loss and people with disabilities as a whole. All the project objectives have been met and the findings will be published in due course.

Project deliverables are available in the following language(s)

English

• Public version not yet available. Contact researcher for information or questions.

OPC Funded Project

This project received funding support through the Office of the Privacy Commissioner of Canada’s Contributions Program. The opinions expressed in the summary and report(s) are those of the authors and do not necessarily reflect those of the Office of the Privacy Commissioner of Canada. Summaries have been provided by the project authors. Please note that the projects appear in their language of origin.

Contact Information

Dr. Mahadeo A. Sukhai, Ph.D. (He/Him/His)
Vice-President Research and International Affairs
& Chief Accessibility Officer
ARIA Team (Accessibility, Research & International Affairs)
Canadian National Institute for the Blind (CNIB)
1929 Bayview Avenue
Toronto, ON  M4G 3E8
Tel: 437-775-9097
E-mail: Dr. Mahadeo A. Sukhai
LinkedIn: Dr. Mahadeo A. Sukhai